How are you doing? - Kiwi Farms Wellness Check

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Ran a 100.4 during my vitals at 9pm. It's now 2am and I still haven't gone to bed between the x-ray, blood culture, labs, antibiotic IV, and now waiting on platelettes and blood. Worst part is I don't even feel like I'm running a fever. Besides my fatigue from my numbers being (expectedly) low post chemo and stem cell transplant and mucus drainage from the same thing, I feel good. Just sucks since my parents are coming to visit me today, and I hate falling asleep when someone comes to visit me.
 
That could buy my mom enough Tylenol to ensure I get turbo autism.

I don't know who that is; I only know who Zoey is from reading community happenings posts. I also know plenty of niche stuff about many other topics not related to Zoey. I'm pretty sure that the #freeross guy doesn't know as much about lolcows as me. The fact we both hate our moms is merely coincidental.
Why exactly can't you just leave? Are you disabled in some way? There's nothing legally stopping you from walking out the front door and never coming back. You can take your life back right now, do it.
 
After being out of action for a week, I diagnosed and fixed my car in two minutes for free. One of the coil packs was completely dead and not generating spark. Coil packs are basically bastardised transformers with a primary and secondary winding.

I didn’t measure the primary side because reasons, but on the secondary side, two of them measured good, the third was a completely open circuit. Two small bolts and a friend’s spare, and we’re back in business.

I feel pretty good about that. I used the money that I saved to buy myself a new Raspberry Pi 500+ keyboard computer thing (think like a modern Amiga or ZX Spectrum). Looking forward to having it early in the week.
 
Feeling somewhat optimistic, I'm going to go back to community college next year, I went once before and failed horribly (more like I was coerced into it before I was ready, the undiagnosed 'tism made it impossible for me to function in the college setting). This time I actually have a plan on what I want to do, and will seek out accommodations for my autism so I don't crash and burn.
 
This hits too close to home. I normally try to make a point to at least go somewhere on my birthday. Last year I went to my favorite amusement park by myself and it was super depressing. Yeah I went on rides, overpaid for some chicken tenders, but I was at the waterpark and just sat there. No one to talk to, no one to share with. Everyone else with big groups of friends or at least a girlfriend to share it with. They wouldn't let me on the ferris wheel without another rider so I went home. This year I didn't do anything for my birthday. I thought about going out somewhere, or making an effort to go to the beach, but I figured what's the point?
Happy belated birthday my friend :heart-full: I deffo relate. Tbh I can't remember the last birthday I haven't cried on lol. Next time you and I will have a party. And ride a ferris wheel
 
More back-talk: I do not have excruciating neck/ back/ shoulder pain today. That makes today one of maybe 10 nearly pain-free/ low pain days in the last...decade? I am 🤞 that this means the steroid injection into my spine I had 10ish days ago (not even between the smashed-together vertebrae bc the surgeon was like, there's not even room enough there for my tiny, imagery-guided needle; I'm injecting below and aiming up) is finally working a bit and that PT will now be able to address some cascaded issues.

Since the injection it's been varying pain, sometimes slightly different, but tbh sometimes slightly worse, so I got a bit down about it. But this week I started making a point all day long to correct how I hold my head and to stop scrunching my shoulders, lowered my monitors at my desk, etc. Thursday the PT was finally willing to start with some exercises for my shoulder and back to strengthen muscles weakened by nerve compression and to retrain muscles that have been trying to cope and compensate. Yesterday it all still hurt through neck/ back/ shoulder (and my traps were burning the whole time I was working in the office) but I did the exercises at home as directed. This morning - even after a late late late night and sleeping hard on the bad shoulder - I woke up and...felt nothing. I mean, no pain (and no numbness or tingling, which started this spring, and increased through the summer). Strange. Kind of moved around a bit, expecting it to kick in (mornings have been rough this past week especially), but nope. Or not much - as the day's gone on there is some, but maybe 20-50% of usual.

I really, really hope that this can buy me at least some more and some non-excruciating time before having to look at spinal surgery. Or pain meds, which I do not want. There's no reversing what's already happened, and it will progress, but if occasional injections and PT don't keep the nerve compression and pain at bay for long, I'd rather just get surgery, even if it means getting metal drilled into my vertebrae or burring out bone to make room for the nerves.

In any case, a half-day of relief feels really, really good. As does activating and using muscles that have been forgotten and weakened, allowing the ones that have been overcompensating to get some relief as well.

In the mental health world, there's often this concept of forgiving yourself for acting against your greater interests or coping poorly, because you didn't know any better. And true self-awareness and sorting yourself out means that now that you know better, you can do better. That's how I feel about my mess of muscular poor coping. My body has been trying for decades to compensate for something that was going wrong*, and certain muscles having been doing their best to pick up the slack or avoid pain in the best way they know how - straining and hurting themselves, or weakening, in the process. And I was - aside from constant pain, which I generally just power through - able to do anything I wanted to do, up until this year. Annoying it came to this, but now I know at least one root cause and am actively taking steps to address it. :optimistic:

* it wasn't until I experienced numbness, tingling, and some weakness in one arm/shoulder that anyone ordered an MRI, which told the story.
 
Why exactly can't you just leave? Are you disabled in some way? There's nothing legally stopping you from walking out the front door and never coming back. You can take your life back right now, do it.
My mom won't let me leave, and I have nowhere to go. I don't have any friends I could move in with, I don't have a driver's license, and I don't have a job, and I'm not allowed to go off to college, so I am stuck. If I were to ask her to let me leave, she would either scream at me or tell me about how I'm not ready for the world, and she wouldn't even be wrong because she intentionally crippled me. I have no escape; I am practically a prisoner.
 
My mom won't let me leave, and I have nowhere to go. I don't have any friends I could move in with, I don't have a driver's license, and I don't have a job, and I'm not allowed to go off to college, so I am stuck. If I were to ask her to let me leave, she would either scream at me or tell me about how I'm not ready for the world, and she wouldn't even be wrong because she intentionally crippled me. I have no escape; I am practically a prisoner.
Then let her scream at you, you do not "ask" her to leave, you tell her your leaving, of course you do need a driver's license first, so start with that, you're not powerless. Get a driver's license, get a job, any job, move out, even if it's in a REALLY shitty apartment, anything would be an improvement over the way your living now. Unless she literally crippled you, I'm not sure what you meant by that.
 
Then let her scream at you, you do not "ask" her to leave, you tell her your leaving, of course you do need a driver's license first, so start with that, you're not powerless. Get a driver's license, get a job, any job, move out, even if it's in a REALLY shitty apartment, anything would be an improvement over the way your living now. Unless she literally crippled you, I'm not sure what you meant by that.
"b-but I don't WANNA!!!"
Don't waste your time on people who love being miserable.
 
Then let her scream at you, you do not "ask" her to leave, you tell her your leaving
So I let her scream at me, and then, if I manage not to cry, I tell her I'm leaving and drive my car illegally. I then somehow find a place to live that I can afford with no job experience. Brilliant idea.
, of course you do need a driver's license first, so start with that, you're not powerless.
I don't know how to parallel park. I guess I could try and convince her to let me practice driving, but that's going to take tons of work. But either way, it's not going to be as easy as getting in my car and driving away from home.
Get a driver's license, get a job, any job, move out,
The driver's license will be difficult for me to get, and even if I manage to get it, my mom will scold me for going to places without her permission. I wish I could easily get a job, but it's hard to do that without her once again scolding me. I also don't even know if the jobs I could get would pay my monthly rent. This is why I feel hopeless; all these solutions are practically fairy tales—they will not happen in the real world.
even if it's in a REALLY shitty apartment, anything would be an improvement over the way your living now.
How can I afford an apartment with an entry-level job? Usually where I live, they start at 900 a month.
Unless she literally crippled you, I'm not sure what you meant by that.
She crippled me by holding me back in life. I have no friends, no work experience, and very little education, not to mention I have terrible social anxiety, so she crippled me, not physically but mentally.
"b-but I don't WANNA!!!"
Don't waste your time on people who love being miserable.
I don't love being miserable, but the solutions people tell me, which basically amount to "get a job and drive away," aren't feasible when I don't have a driver's license and I don't have the skills needed to pass a driver's test.
 
I then somehow find a place to live that I can afford with no job
Then join the military like you suggested. You can chat with any branches recruiter online to set up an appointment with them. Most of them will come pick you up if you can't transport yourself. They take GED. They'll provide you with housing, food, clothing, and pay you while you do training, and same thing when you get to your first duty station. You'll even get to finish college your way while you're in with Tuition Assistance and the GI Bill. Most bases also have programs in place to assist with getting your license if you don't already have one. Your mother can do nothing to stop this process. You're over 18 and can sign up all by yourself, her thoughts on the matter are of zero concern to the military. Is she going to be upset at you for doing all this? Probably, but if you truly want to escape then don't feed into her bullshit and cut her out once you get on the bus from MEPS to basic training.
 
Update on the decorating, The paint sticks to everything except the roof I bought it for. Brand new utility knife blades aren't capable of cutting this wallpaper properly, the coverage calculator was a fuckin' lie also wallpaper has bubbled in places I'm so overwhelming and incomprehensibly buttmad I kicked my computer chair again.
Trying to do DIY home improvement makes me understand the meme landlords, who paint over light switches, dead roaches and previous tenants, because at some point while dealing with paint that has its own laws of physics apparently, they just give up. And when the plaster finally sticks to the wall right and is evenly distributed? Corners are sharp or nicely rounded? Congrats, you've made a very normal, ordinary wall. One of billions of ordinary walls in the world. Now do cleanup.
 
I don't love being miserable, but the solutions people tell me, which basically amount to "get a job and drive away," aren't feasible when I don't have a driver's license and I don't have the skills needed to pass a driver's test.
Ladies and gentlemen; applied learned helplessness.
 
Getting a driver's license is not difficult at all, I'll power level a bit about myself to drive the point home. I have both autism and ADHD, and even I managed to get a driver's license, it's not hard at all, you shouldn't have any issues getting one. I get what you mean about rent prices though, they're ridiculous, though there are some places that are affordable.
 
This morning I threw my back out after just slightly bending over to pick up some socks. It felt like a sledge hammer fell on my lower spine even if what I did was so casual. I spent most of the time laying on the floor unable to move without going into serious pain. It took me hours to get up and make an attempt to reach my bed. Trips to the bathroom end up being an Olympic task. Today has been one of the most physically painful days in my life.
Motherfucking same. One wrong move two days ago and i am crippled so badly i can't sleep from the pain. I simply can't sit nor lay down without it killing me. 4 AM and i am standing in my bedroom like a retard. I wish i was a horse.
 
The fact we both hate our moms is merely coincidental. [rant a few pages earlier]
I am dead serious when I say this: the best thing you can do is stop placing importance on your mother. If she's a retard, she's a retard. Parents of bad intent do exist, contrary to what culture says, intent being evident simply by if their behavior is unchanged by external input. You've brought things up to her, she hasn't changed; she intends to suppress, smother you, and direct you. So, stop treating her as important, stop hating and caring about her best you can; that as it goes makes it ever the easier to force your own decisions. The main way parents of bad intent enforce control is through your care for them, not through physical or legal force.
 
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Good news - I was able to lift more than usual and I am proud of myself. Bad news - my upper back hurts and I am not very proud of myself.
Otherwise, I am trying to enjoy my vacation. Have a great Sunday, everyone.
 
Not very well. I'm middle aged and I'm basically waiting to die of old age or boredom, whichever comes first. I'm not even complaining. It's just that the only strong feeling I've left is extreme irritation with human rudeness and a few of my pet peeves. Feels weird, man.
 
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