🪦 Deceased Gwen Hartley & The Hartley Hooligans - Attention Seeking Horrorshow Mom of Two Dead Gremlins & Finally Free Human Son

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Candidae said:
I'm pretty sure this trip to the hospital has proven to me that with any form of modern medicine the potatoes could have at least had some semblance of some quality of life. Within an instant Lola was better when receiving proper treatment. I was already mad at Gwen for her Woo shit but this pretty much just solidifies it. In my opinion, if she's going to act like the potatoes as if they are alive, she's going to have to treat them like it. Give them medications, we know Gwen doesn't actually believe in homeopathy or naturopathy or she would go to one of those con men when Lola is sick, not straight to the hospital. Does Cal have to use any of these therapies when he's sick? As far as I know he's been using modern medicine while his sisters are given raw goat's m.ilk, essential oils, and CBD to cure all their ailments which is just disgusting on so many levels. No the sisters aren't alive like us but we'd still look down on someone for torturing a butterfly or a spider
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Gwen just doesn’t like to face the actual medical reality of the spuds when they are in a clinical environment. She sent angry letters at a doctor for 16 years for simply being honest about Claire’s prognosis. Hospitals don’t refer to “super powers” or “sassy teenagers” - they note the spuds have never progressed past the newborn level an it pisses Gwen off. She wants nothing to do with negative nancys that don’t offer inspiring cliches and tell her what inspirational miracles Claire and Lola are.

This is the main reason she’s into woo and avoids real medical science. I’m sure Cal got standard medical care no problem. Scott’s father is a medical doctor ffs, but I’m sure he was like “whatever Gwen wants is fine” when it came to the spuds.
 
WarpedTourWasFun said:
Did she ever say if Cal had gotten tested to see if he was a carrier? Because she's absolutely going to pressure him for tater tots.
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I'm fairly certain she did say he got tested, but the results were kept private.

EDIT:
"...and we also wanted to have answers for Cal so that someday when he wanted to have children, he would know if he was a carrier like we were. We knew it was a long shot, but we decided to submit blood samples to both labs. We sent blood samples from all five of us to Boston for testing. "

www.thehartleyhooligans.com

We've got answers!

9.30.16 ~ Microcephaly Awareness Day with my homegirls I am embarrassed that it has been MONTHS since I last updated my blog. You gu...
www.thehartleyhooligans.com www.thehartleyhooligans.com
 
WarpedTourWasFun said:
Did she ever say if Cal had gotten tested to see if he was a carrier? Because she's absolutely going to pressure him for tater tots.
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I'm 99% sure she did, but said she wasn't going to share the results to respect his "privacy"...you know, the same kid whose "sorry I said the R word" essay from when he was 10 is still on the internet today. I'm inclined to believe he's not a carrier, because Gwen would be foaming at the mouth and shouting it from the rooftops if she had a chance at a Grandtater.
 
Slatonitis said:
I'm 99% sure she did, but said she wasn't going to share the results to respect his "privacy"...you know, the same kid whose "sorry I said the R word" essay from when he was 10 is still on the internet today. I'm inclined to believe he's not a carrier, because Gwen would be foaming at the mouth and shouting it from the rooftops if she had a chance at a Grandtater.
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Hmm, this has me curious because it could go both ways in Gwen’s mind:
1. A genetic disorder is something to be ashamed of and not disclosed. Once the tater is conceived/born, however, that is a different story.
2. Who’s Cal?
 
I keep hoping every time I visit this page that Lola passed. I kind of feel bad for hoping she does, but it's more humane than anything her mother has done in her life.
 
FramerGirl420 said:
I'm fairly certain she did say he got tested, but the results were kept private.

EDIT:
"...and we also wanted to have answers for Cal so that someday when he wanted to have children, he would know if he was a carrier like we were. We knew it was a long shot, but we decided to submit blood samples to both labs. We sent blood samples from all five of us to Boston for testing. "

www.thehartleyhooligans.com

We've got answers!

9.30.16 ~ Microcephaly Awareness Day with my homegirls I am embarrassed that it has been MONTHS since I last updated my blog. You gu...
www.thehartleyhooligans.com www.thehartleyhooligans.com
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I like how she follows up "Claire just turned 15" with "(HOW CAN THIS BE?!?!??!)!!!". It's probably meant to be "Oh I can't believe my children are growing up so fast" but it sounds like Gwen briefly realized how wrong Claire's whole existence was.
 
Kate Farms Shill said:
Late, but yes. In fibrodysplasia ossificans progressiva, respiratory problems are often some of the worst complications. The disease causes connective tissue and muscle to ossify, so they can't expand their rib cages to breathe. It's an extremely rare disease, though.

Here's a little boy whose back is getting all hunched over from it. He'll never be able to sit up straight again.
View attachment 930621

This is the skeleton of Carol Orzel, who donated her body to the Mütter Museum in Philadelphia so it could be displayed next to another FOP skeleton. She died in 2018 at 58 which was a very long time for someone with FOP to survive. Many people with FOP (including Carol, I believe) die of cardiorespiratory failure because their heart and lungs just can't function when they're crushed by so much bone tissue. Her skeleton doesn't look that gnarled because she also had severe osteoporosis and arthritis at the time of her death and some of the excess bone had lost so much calcium it was translucent. But you can still see that rib cage ain't right.
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Here she is in life, an old pic from quite a while before her death. She had almost no body fat or muscle tissue left at the time of her death and could only move one finger and her wrist.
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Thanks, I saw some cases and I was curious if anyone else was shaped like a bookend like Lola.
She has always been an extreme, I think now it's just her shape is even more grotesque.

TheWhiteRabbit said:
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::eyeroll::
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I know Lola needs what's left of her hair tied up, but for real Gwen... she just almost died, what's with the croydon facelift....
 
Lola looking like the picture of health during some animal therapy. As usual, her eyes are nowhere near the subject right in front of her face, and Gwen is looking on manically like she just won an Emmy. Hopefully she rooted on this dogs mouth after it licked another dogs butt and caught some new germs so she can finally be released from this hell Gwen calls a life.

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Bunny said:
I keep hoping every time I visit this page that Lola passed. I kind of feel bad for hoping she does, but it's more humane than anything her mother has done in her life.
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Same here. I've been manically checking their fb daily in hopes that she's finally at rest. Yesterday, Gwen posted that Lola is gradually getting better & is back on the regular ol' oxygen she uses at home. I can't help but wonder if this may be her last hurrah. She'll rally (as much as a brainless goblin can), appear to get better then crash hard & fast.

Gwen also posted about how they want to protect Lola from germs but also want her to live her life to the fullest. Um, she's blind, deaf, brainless, & gnarled up like a stone gargoyle. How much "living" can she do? She doesn't even know she's alive.

In the pic with the dog where she's facing the camera, wtf is going on under her chin? Is it a rash? At first I assumed it was her birthmark but I've never seen her birthmark as prominent & in that part of her face before.
 
Slatonitis said:
Lola looking like the picture of health during some animal therapy. As usual, her eyes are nowhere near the subject right in front of her face, and Gwen is looking on manically like she just won an Emmy. Hopefully she rooted on this dogs mouth after it licked another dogs butt and caught some new germs so she can finally be released from this hell Gwen calls a life.

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I'm pretty sure this qualifies as animal cruelty.
 
Pro tip: Lola would be at significantly less risk for common illnesses if you didn't drag her out in public and let her root from water fountains. But obviously you might lose out on some asspats and attention if she stays at home, so we know what's really more important here.
 
Right. When your kid nearly bit it due to a cold, and has no immune system to speak of, it's best to expose her to animals before she has recovered. Or maybe Gwen secretly wants Lola to expire. I can't say I'd blame her if that's the case.

The dog looks bewildered. The sad thing is that the dog is far more intelligent and aware than Lola. Lola doesn't seem to know the dog is there.
 
Gwen's trying to deny how frail Lola is by dressing up her condition in the longest and most complicated words she can. She literally got a cold from eating something gross. A normal person would shrug this sort of illness off.
 
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